A home-based and community-centred care delivery model that is patient-centred with wide validation across various countries. The iCARE-PD project are conceived as a form of experience-based design involving patients, care partners and healthcare providers to collaboratively co-design an integrated care delivery model.
A Self-management tool validated by People living with Parkinson Disease (PD). The goal of self-management support is to empower patients with the skills and confidence necessary to manage PD. The eHealth solution will help People living with PD to adjust their self-care over time and find medical and social resources.
A co-design approach is a core strategy to incorporate stakeholder input (People living with PD, care partners and healthcare providers) in the design of digital health solutions. Various eHealth technologies are designed to provide more effective integration of care: TeleNeurology, mHealth, wearable sensors.
Partners in iCARE-PD have started to develop innovative sustainable care models shifting from “(in)outpatient care” to “home-based community centred integrated health care” that focus in Integrated Care, Self-management support (SMS) and Technology-enabled Care (TEC) using a patient-centred approach. We hypothesize that this set of interventions can play a critical role in a solution to the challenges of complex care in PD, enhancing the patient dignity and care equity. For the success of this care model in a varied social/economic landscape, we need to determine what and how Integrated Care and Self-Management Support can be implemented across different social contexts by:
Parkinson’s Disease (PD) is a progressive neurological disease with physical, psychological and cognitive symptoms that affects an estimated 6.2 million people worldwide (European Parkinson’s Disease Association, 2017). Motor symptoms such as tremor and freezing of gait as well as non-motor symptoms such as sleep disturbance, anxiety, and depression can have a significant impact on a person’s Quality of Life (QoL).
The healthcare industry has been exploring how eHealth technologies can support health care providers and patients monitor and manage their symptoms in the home environment. This has prompted healthcare providers to develop integrated care models and explore technological solutions such as mHealth, wearable devices, sensor devices to help People with Parkinson’s (PwP) manage their symptoms, improve care, and QoL.