Scientific articles published
2022
Sendra, A., Grosjean, S., & Bonneville, L. (2022). Co-constructing experiential knowledge in health: The contribution of people living with Parkinson to the co-design approach. Qualitative Health Communication, 1(1), 101–121. https://doi.org/10.7146/qhc.v1i1.124110
Hoskovcová M., Růžička, E., Gál, O (2022). The Category of Conventional Physiotherapy: The Case of Parkinson’s Disease Guidelines. Journal of Personalized Medicine, 12(5):730. https://doi.org/10.3390/jpm12050730
Stührenberg, M., Berghäuser, C., van Munster, M., Pedrosa Carrasco, A., Pedrosa, D. (2022). Measuring Quality of Life in Parkinson Disease: A Call to Rethink Conceptualizations and Assessments. Journal of Personalized Medicine, 12(5): 804. https://doi.org/10.3390/jpm12050804.
Fabbri, M., Coelho, M., Garon, M., Biundo, R., Mestre, T., Antonini, A. (2022). Personalized Care in Late-Stage Parkinson Disease: Challenges and Opportunities. Journal of Personalized Medicine, 12(5): 813. https://doi.org/10.3390/jpm12050813.
van Munster, M., Stümpel, J., Thieken, F., Ratajczak, F., Rascol, O., Fabbri, M., … & Pedrosa, D. J. (2022). The Role of Parkinson Nurses for Personalizing Care in Parkinson’s Disease: A Systematic Review and Meta-Analysis. Journal of Parkinson’s Disease, vol. 12, no. 6, pp. 1807-183.
Dash, D., Cote, D., Conway, J., Grimes, D., & Mestre, T. A. (2022). Evaluation of the Impact of Integrated Care and Self-Management After Deep Brain Stimulation in Parkinson’s Disease. Journal of Parkinson’s Disease, vol. 12, no. 4, pp. 1279-1284.
Vila-Viçosa, D., Leitão, M., Bouça-Machado, R., Pona-Ferreira, F., Alberto, S.; Ferreira, J., Matias, R. (2022). Smartphone-Based Body Location-Independent Functional Mobility Analysis in Patients with Parkinson Disease: A Step towards Precise Medicine. Journal of Personalized Medicine, 12(5): 826. https://doi.org/10.3390/jpm12050826.
Gauthier-Beaupré, A., Poitras, E., Grosjean, S., Mestre, T. (2022). Co-Designing an Integrated Care Network with People Living with Parkinson Disease: A Heterogeneous Social Network of People, Resources and Technologies. Journal of Personalized Medicine, 12(6), 1001. https://doi.org/10.3390/jpm12061001.
Schmitz-Luhn, B., Chandler, J. (2022). Ethical and Legal Aspects of Technology-Assisted Care in Neurodegenerative Disease. Journal of Personalized Medicine, 12(6): 1011. https://doi.org/10.3390/jpm12061011.
van Munster, M., Stümpel, J., Clemens, T., Czabanowska, K., Pedrosa, D., Mestre, T. (2022). Telemedicine as an Untapped Opportunity for Parkinson Nurses Training in Personalized Care Approaches. Journal of Personalized Medicine, 12(7): 1057. https://doi.org/10.3390/jpm12071057.
Stümpel. J., van Munster M., Grosjean, S., Pedrosa, D.J., Mestre, T.A. (2022). Coping Styles in Patients with Parkinson’s Disease: Consideration in the Co-Designing of Integrated Care Concepts. Journal of Personalized Medicine, 12(6):921. https://doi.org/10.3390/jpm12060921
Grosjean, S., Ciocca, J. L., Gauthier-Beaupré, A., Poitras, E., Grimes, D., Mestre, T. (2022). Co-designing a digital companion with people living with Parkinson’s to support self-care in a personalized way: The eCARE-PD Study. Digital Health, 8, 20552076221081695. https://doi.org/10.1177/20552076221081695
2021
Grosjean, S., Coma, J. F., Gal, O., Laffan, A., Sendra, A., Stuempel, J., & Mestre, T. (2021). Co-designing an Integrated Care Network With People Living With Parkinson’s Disease: From Patients’ Narratives to Trajectory Analysis. Qualitative Health Research, 31(14), 2585-2601. https://doi.org/10.1177/104973232110042605
- Mestre, T. A., Kessler, D., Côté, D., Liddy, C., Thavorn, K., Taljaard, M., & Grimes, D. (2021). Pilot Evaluation of a Pragmatic Network for Integrated Care and Self‐Management in Parkinson’s Disease. Movement Disorders, 36(2), 398-406.
2019-2020
Fabbri, M., Caldas, A. C., Ramos, J. B., Sanchez-Ferro, Á., Antonini, A., Růžička, E., … & Ferreira, J. J. (2020). Moving towards home-based community-centred integrated care in Parkinson’s disease. Parkinsonism & Related Disorders, 78, 21-26.
Luis-Martínez, R., Monje, M. H., Antonini, A., Sánchez-Ferro, Á., & Mestre, T. A. (2020). Technology-enabled care: Integrating multidisciplinary care in Parkinson’s disease through digital technology. Frontiers in Neurology, 11, 575975
Grosjean, S., Bate, E., & Mestre, T. (2020). Designing socially acceptable mHealth technologies for Parkinson’s disease self-management. Finnish Journal of eHealth and eWelfare, 12(3), 163-178.
Kessler, D., Hauteclocque, J., Grimes, D., Mestre, T., Côtéd, D., & Liddy, C. (2019). Development of the Integrated Parkinson’s Care Network (IPCN): using co-design to plan collaborative care for people with Parkinson’s disease. Quality of Life Research, 28(5), 1355-1364.
Grimes, D., Miyasaki, J., Fon, E. A., Schlossmacher, M., Suchowersky, O., Rajput, A., … & Zurowski, M. (2019). Canadian guideline for Parkinson disease. Canadian Medical Association. Journal, 191(36), E989-E1004
Espay, A. J., Hausdorff, J. M., Sánchez‐Ferro, Á., Klucken, J., Merola, A., Bonato, P., … & Reilmann, R. (2019). A roadmap for implementation of patient‐centered digital outcome measures in Parkinson’s disease obtained using mobile health technologies. Movement Disorders, 34(5), 657-663
Vizcarra, J. A., Sánchez‐Ferro, Á., Maetzler, W., Marsili, L., Zavala, L., Lang, A. E., … & Dorsey, E. R. (2019). The Parkinson’s disease e‐diary: Developing a clinical and research tool for the digital age. Movement Disorders, 34(5), 676-681.
Conferences & Research Présentations
Grosjean, S., Farré-Coma, J., Gal, O., Laffan, A., Stümpel, J., Mestre, T. (2021). How can patients’ trajectories inform the co-design of an integrated care network for people living with Parkinson’s Disease?, MDS Virtuel Congress.
S. Grosjean, JL. Ciocca, E. Poitras, A. Gauthier-Beaupré, D. Côté, D. Grimes, T. Mestre (2021). Co-designing a meaningful, humane and personalized eHealth platform (eCARE-PD) for people living with Parkinson’s Disease. MDS Virtual Congress.