Research Publications

Scientific Papers

Kessler, D., Hauteclocque, J., Grimes, D., Mestre, T., Côtéd, D., & Liddy, C. (2019). Development of the Integrated Parkinson’s Care Network (IPCN): using co-design to plan collaborative care for people with Parkinson’s disease. Quality of Life Research, 28(5), 1355-1364.
Grimes, D., Miyasaki, J., Fon, E. A., Schlossmacher, M., Suchowersky, O., Rajput, A., … & Zurowski, M. (2019). Canadian guideline for Parkinson disease. Canadian Medical Association. Journal, 191(36), E989-E1004
Espay, A. J., Hausdorff, J. M., Sánchez‐Ferro, Á., Klucken, J., Merola, A., Bonato, P., … & Reilmann, R. (2019). A roadmap for implementation of patient‐centered digital outcome measures in Parkinson’s disease obtained using mobile health technologies. Movement Disorders, 34(5), 657-663
Vizcarra, J. A., Sánchez‐Ferro, Á., Maetzler, W., Marsili, L., Zavala, L., Lang, A. E., … & Dorsey, E. R. (2019). The Parkinson’s disease e‐diary: Developing a clinical and research tool for the digital age. Movement Disorders, 34(5), 676-681.

Conferences

T. Mestre, D. Kessler, J. Shen, A. Basndwah, H. Shinawi, C. Nussey, A. Ohman, S. Kumar, D. Côté, C. Liddy, K. Thavorn, M. Taljaard, D. Grimes (2019). Pilot testing of the Integrated Parkinson’s Disease Care Network: feasibility, efficacy outcomes and cost description analysis, International Congress of Parkinson’s Disease and Movement Disorders, September, 23, Nice, France.
T. Mestre, S. Grosjean, L. Bonneville, D. Grimes, E. Bate, M. Lê (2019). eCARE-PD, a digital health platform for patient empowerment and online health tracking: experiences with co-design, Poster presentation, International Congress of Parkinson’s Disease and Movement Disorders, September, 25, Nice, France. [Click on the poster]
F. Thieken, A. Greuel, L. Timmermann, K. Sohrabi, C. Woopen, B. Schmitz-Luhn, A. Janhsen, C. Eggers. (2019). Longitudinal digital observation of the holistic quality of the life of patients with Parkinson’s disease, International Congress of Parkinson’s Disease and Movement Disorders, September, 23, Nice, France.

Methodological Resources

Spatial Analysis Techniques

“The utility of spatial and time-series analysis techniques are increasingly recognized in health research as a means to better understanding disease processes and health care system demands (Morris and Munasinghe, 1994; Carey et al., 2003; Dowell et al., 2003; Crighton et al., 2005).” (Extract from Crighton et al., 2008)

An example of Spatial Analysis Techniques: Crighton, E. J., Elliott, S. J., Kanaroglou, P., Moineddin, R., & Upshur, R. E. (2008). Spatio-temporal analysis of pneumonia and influenza hospitalizations in Ontario, Canada. Geospatial health, 191-202.

For the picture, source: Green, M., Gozdyra, P., Frymire, E., & Glazier, R. (2017). Geographic Variation in the Supply and Distribution of Comprehensive Primary Care Physicians in Ontario, 2014/15.

Co-Design Approach

The main purpose of the Co-Design Approach is to create a collaborative partnership with the people destined to use services or technologies. The notions of collaboration and engagement are at the heart of the co-design approach, and may be understood as the complex process that combines doing, talking, thinking, feeling, and sharing experience and knowledge (Grosjean et al., 2019). Various tools and techniques are developed to involve users in co-design dialogues (Sanders, Brandt & Binder, 2010). A methodological guide has been developed to support the preparation and animation of the co-design workshops with People living with Parkinson’s Disease (PD) and healthcare providers (HCPs). S.Grosjean and L.Bonneville have developed a guideline to help individuals from different countries who are willing to run the co-design workshops.

Workshops and Seminars

Co-Design Workshops: iCARE-PD training sessions

Organized by the Cross-Cutting Group #1 (CCG Co-Design) – S.Grosjean & L.Bonneville (University of Ottawa)

Training session #1 (August, 2 2019): How to conduct a narrative interview?
Training session #2 (August, 28 2019): How to conduct a qualitative data analysis of narrative interviews?
Training session #3 (September, 12 2019): How to prepare and lead a co-design workshop?
Training session #4 (October, 3 2019): How to analyse the data collected during the co-design workshops?