eCARE-PD: Co-designing an eHealth Technology for Complex Care in Parkinson’s Disease

Click on the pictures to learn more about the eCARE-PD. 

Since few years a new paradigm in healthcare are implemented that is call patient-centered care (PCC). This has prompted healthcare providers to develop integrated care models and explore technological solutions to help people living with Parkinson’s (PwP) manage their symptoms, improve care, and Quality of Life (QoL). PCC implies fundamental changes in the ways that eHealth technologies are designed and the involvement of the patients (as real partners) is considered vital to achieve this goal. When designing eHealth technology, especially if the goal is long-term use to support self-management practices, it is necessary to consider the variety of contexts of potential use, and explore how the technology will be integrated into the social life of PwP. The purpose of the study was to design a eHealth technology (eCARE-PD platform) to enable PwP to manage collaboratively with care partners and healthcare providers their own health and care. 

A Co-Design Approach was used throughout the study to design the eCARE-PD platform. The co-design of eHealth technologies is an iterative design using mixed methods and the exact specifications will be an output of this study. The findings were translated into design requirements for the development of self-monitoring tools. This has made it possible to propose user interfaces that integrate the changes proposed by PwP.

Study led by: Dr.Mestre (Parkinson’s Disease & Movement Disorders Clinic, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute, Ottawa, Canada) in collaboration with S.Grosjean & L.Bonneville (University of Ottawa, Co-design Working Group) and Macadamian (Design & Development)

 

Wearable Device

Nano-Wearable Technology and Parkinson’s Disease

People with Parkinson’s could see their care transformed by the development of wearable technologies. Wearable sensors (e.g. accelerometers, gyroscopes integrated in garments or worn as accessories) and other wearable technologies are developed to capture motor symptoms such as tremor and freezing of gait. 

Project led by the Dr. Lynch (The Mater Misericordiae University Hospital, Ireland).